Stories of Sacrifice

'About midway through the taping of the series, Pedro’s health began to decline, but he told producers that he wanted them to tell his story until the end.'
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Pedro Zamora, 1972-1994
Recording by Wilson Cruz
Story by The AIDS Memorial and Irwin M. Rappaport
Photo © MTV

Pedro Zamora’s bravery and commitment to AIDS advocacy engaged and educated TV audiences around the world.  Pedro was a cast member on Real World: San Francisco from 1993 to 1994.  I’m Wilson Cruz, and hardly a day goes by that I don’t remember Pedro’s courage and dedication.

On Real World: San Francisco, Pedro was one of the first openly gay people with AIDS that many people ever saw on TV.  Simultaneously, on My So Called Life, I was the first openly gay actor playing an openly gay character in a series regular role on American TV.  And to this day, Pedro still inspires me as an actor, as a man, and as an activist.

Pedro Zamora was the youngest of eight children living in Havana, Cuba when his parents decided to emigrate to Florida as part of the highly-publicized Mariel Boat Lift in 1980.  Pedro was an honor student, captain of the cross-country team and President of the Science Club at his high school where he was voted Best All Around and Most Intellectual.  But at 17 years old, Pedro learned he was HIV positive after donating blood at a blood drive.

His HIV-positive diagnosis propelled him to become a full-time AIDS educator, so that other young people could learn what he was never taught.  This led to hundreds of speaking engagements; a front page article about him in the Wall Street Journal; appearances on major talk shows hosted by Oprah Winfrey, Geraldo Rivera and Phil Donahue; and testimony before the U.S. Congress on AIDS education.

Producers of the Real World wanted to cast an HIV-positive person.  Being cast on the series gave Pedro his biggest platform for AIDS education and won him fans all over the world.  Audiences watched how his HIV status affected his relationships with housemates and his health.  They celebrated his commitment ceremony with partner Sean Sasser, which was the first such ceremony in the history of television.

But about midway through the taping of the series, Pedro’s health began to decline, but he told producers that he wanted them to tell his story until the end.  When the stress from his conflict with a homophobic housemate, Puck Rainey, led Pedro to want to move out of the Real World house, his other housemates instead voted to evict Rainey.  Time magazine ranked that episode #7 of the top 32 most epic episodes in reality TV history.

In late June 1994, the Real World: San Francisco began to air on MTV.  At a cast reunion party only two months later in August, Pedro’s progressing illness was evident.  He was diagnosed with toxoplasmosis, a disease that causes brain lesions, and also a rare and often fatal virus that causes inflammation of the brain.  Doctors estimated that he had 3-4 months to live.

In September 1994, he was transferred to a hospital in Miami near his family.  With the help of the U.S. government, the remainder of his family was allowed to move to the U.S., so that they could be with Pedro before he died.  MTV paid for his medical costs, because Pedro was unable to get health insurance due to having a pre-existing condition.

Pedro Zamora died of AIDS at age 22, the morning after the final episode of the show was broadcast.

A memorial fund, youth clinic, a public policy fellowship, a youth scholarship fund and a street in Miami are named in Pedro’s honor.  He was one of the 50 people first included on the National LGBTQ Wall of Honor as part of the Stonewall National Monument, the first national monument in the U.S. dedicated to LGBTQ history.

Reflecting on Pedro’s death, President Clinton reminded us, “We must remember what Pedro taught us:  One person can change the world — and whether or not we are living with HIV or know someone who is, we all have a responsibility as global citizens to do whatever we can.  Life is short enough as it is.  No one should die from a disease that is both preventable and treatable.”

"I have taken chances that have almost killed me, and I will keep on taking them.  I have nothing to lose.”
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Ron Woodroof, 1950-1992
Recording by Matthew McConaughey
Story by Irwin M. Rappaport
Photo by The Dallas Morning News

Ron Woodroof was an unlikely hero, but he rose to the occasion and became a lifeline for many people with AIDS in the Dallas area. Ron created the Dallas Buyers Club in 1988 to get HIV and AIDS medication to those in need who couldn’t legally get it from doctors and pharmacies.

I’m Matthew McConaughey. I had the privilege of portraying Ron in the 2013 movie Dallas Buyers Club, for which I was honored with the Academy Award for Best Actor.

Ron, a feisty, foul-mouthed electrician who lived in Oak Lawn, Texas, tested positive for HIV in the mid-80s and was given only a few months to live.  Soon after, his third marriage ended in divorce. When the FDA-approved drug AZT failed to help his condition and caused significant side effects, Ron researched and bought drugs from outside the U.S. that were not approved by the U.S. government. They helped lessen his symptoms and prolong his life, but the FDA wouldn’t allow Americans to bring more than a three-months supply of unapproved drugs into the U.S., and clearly many people didn’t have the money to travel abroad to buy medicine.

With the help of his doctor and a fellow patient, he began importing, or obtaining from underground chemists in the U.S., different drugs, nutritional supplements and treatments through The Dallas Buyers Club for use by others suffering from HIV and AIDS.  Eventually, the club imported over 100 different treatments. Clubs would often test samples of new drugs at a friendly laboratory to make sure they had the right quality and potency.

According to a Dallas Morning News article in 1992, Ron, who often dressed as a priest or a doctor in a white lab coat, made over 300 trips across the U.S./Mexico border, smuggling as many as half a million pills in the trunk of his Lincoln Continental, tricked out with heavy duty air shocks so that the car wouldn’t sag with all the extra weight.  Ron and others who worked at or bought drugs from the buyers’ club risked arrest and death by importing and taking unapproved medications, but when your disease is a death sentence, is it really such a big risk?

As Ron put it, “Dammit … I don’t see how anything can be more toxic than HIV itself.  I have taken chances that have almost killed me and I will keep on taking them.  I have nothing to lose.”

Many buyers’ club operators and customers accused the big pharma companies and their FDA regulators of conspiring to keep drug prices high and to keep new competing drugs out of the hands of patients.  Certainly, the slow pace of FDA drug approval was no help to terminally ill people on death’s doorstep.

Ron took an experimental drug called peptide T, which was used to treat AIDS-related dementia, but when the U.S. government intervened and stopped his supplier in Denmark from shipping out the drug, Ron sued the Food & Drug Administration.

“I have no choice with peptide T,” Ron said. “It is the only line I have to staying alive.  When I stop it, I start dragging my leg.  I urinate on myself. I can’t speak.  I slobber all over the damn place.”

A judge ruled against Ron, saying that although there was no Constitutional right to import unapproved drugs, he personally thought that terminally ill people should be able to buy them.  Ron managed to strike a deal that allowed him to get the drug and report his results to the FDA.

Ron died in 1992, six years after his HIV diagnosis.

As Ron said in a documentary released that year, “Let me try anything I can get my hands on. Because if it kills me, at least I died trying.”

'Angie, who was known for her keen sense of fashion, was featured in Jennie Livingston's 1990 documentary Paris is Burning about the drag balls and the houses that fiercely competed to win the trophies.'
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Angie Xtravaganza, 1964-1993
Recording by Dominique Jackson
Story by The AIDS Memorial and Irwin M. Rappaport

Angie Xtravaganza was a Puerto Rican trans performer and the Mother of the House of Xtravaganza.

Her birth family was Catholic, had 13 children, and lived in the South Bronx. Beginning when she was 13 years old, Angie started taking care of other kids who had been rejected by their birth families.  Those kids lived and gathered in Times Square and on the Christopher Street Piers where Angie met Hector “Xtravaganza” Valle.

She started doing drag and performing at Harlem drag balls in 1980 when she was 16.  She and Hector Valle founded the House of Xtravaganza in 1982 when she was 18 years old. It was the first house in the New York ball scene that was primarily Latino and was formed in part because of discrimination against Latino performers in that era.

I am Dominique Jackson, and I played the role of Elektra Abundance in the award-winning television series “Pose” which chronicled the New York drag ball scene.

Timmy Dean Lee recalled, “I miss seeing Angie at the Garage. We took a liking to each other right away when we first met.  My friend Big Lou would introduce us because Angie had admired some of my hand-painted clothing.  It was because of that introduction that I was soon painting clothes for many of the Xtravaganzas, attending the Balls and, on occasion, honored to be asked to be a judge.  The kind, loving but tough Mother Angie.”

Angie, who was known for her keen sense of fashion, was featured in Jennie Livingston’s 1990 documentary Paris is Burning about the drag balls and the houses that fiercely competed to win the trophies.  The film won its own trophies: the Sundance Film Festival Grand Jury Prize, and awards at international film festivals in Berlin, Toronto, San Francisco and Seattle, along with Best Documentary Awards from film critics in New York, Los Angeles and from the National Film Critics Circle.

Angie was diagnosed with AIDS in 1991.  Despite her illness, she took care of her kids.

Frank Xtravaganza told Pulitzer Prize-winning author Michael Cunningham: “The last time she went out, it was St. Valentine’s Day. I’d had a date, but he stood me up, and I was bummed out about it. Angie was really sick by then, but she said, ‘Miss Thing, we’re going out.’ She put on make-up and her wig. She wore jeans and a top that showed her belly button, which was about the only place by then that didn’t have KS lesions. She teased up her wig, sprayed it, and we went to the Sound Factory Bar.”

After she died alone in the hospital in 1993, her ashes were sent back to her family in the South Bronx who buried her with her birth name, Angel Segarra, on the plaque.

In April 1993, Angie’s death and the deaths of others featured in the Paris is Burning documentary were written about in a New York Times article titled “Paris Has Burned” featuring Mother Angie on the front page of the Sunday Style section.

In 1995, Michael Cunningham published an article “The Slap of Love” about Angie and about drag performer and house mother Dorian Corey.

As Hector Xtravaganza said to Cunningham:  “She believed in me when I didn’t believe in me.  We all felt that way.  She believed in us.  She was my gay mother, my friend.  She put so much shit in my head, just the slap of love.  And it woke me up.”

'When Bob spoke, he gave hope to people with AIDS that someone with the President’s ear was in their court, part of their tribe, and might help usher in an era when the federal government actually gave a damn about fighting AIDS.'
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Bob Hattoy, November 1, 1950 – March 4, 2007
Story & Recording by Jeremy Bernard

As Richard Berke wrote in The New York Times Magazine in 1993: “President Clinton learned a valuable lesson when he appointed Bob Hattoy to work in the White House: Never hire a dying man; he has nothing to lose.”

Bob Hattoy served as Associate Director of Personnel in the Clinton White House, but that title didn’t capture the fact that he was the LGBT community’s highest-ranking member and representative in the Clinton Administration. When he took the stage at the 1992 Democratic National Convention, he signaled a sea change in the attention that AIDS would get if Bill Clinton were to be elected President. Bob had learned only a few weeks earlier that his HIV had progressed to AIDS-related lymphoma.

Directing his anger to then-President George Herbert Walker Bush, he didn’t mince words: “We are part of the American family, and Mr. President, your family has AIDS, and we are dying, and you are doing nothing about it.”

“I don’t want to die,” Bob said. “But I don’t want to live in an America where the president sees me as the enemy. I can face dying because of a disease, but not because of politics.”

I’m Jeremy Bernard. I was at the convention when Bob spoke. I was working with David Mixner doing fundraising for Clinton and interacted with Bob throughout the campaign.

Bill Clinton’s presidential campaign was the first one to publicly seek and recognize support and donations from the LGBT community. That evening, like many, I wore a black armband to honor our friends who died of AIDS. When Bob spoke, he gave hope to people with AIDS that someone with the President’s ear was in their court, part of their tribe, and might help usher in an era when the federal government actually gave a damn about fighting AIDS. Bob also helped dozens of LGBT people get positions in the Clinton Administration.

Hattoy’s job as an unofficial LGBT representative in the White House was a thankless one. To many of those on the outside, he seemed like a political sell-out who couldn’t get them what they wanted. To those in the White House, he was an annoyance who was never satisfied with progress on LGBT issues.

Bob was a thorn in the side of the White House when they struggled with the unpopular “Don’t Ask, Don’t Tell” policy regarding gays in the US military. He publicly criticized that policy, comparing it to telling gays they could only be florists and hairdressers. As a result, Hattoy was moved out of the White House personnel office and relegated to being the White House liaison to the Interior Department. That job built upon his work for the Sierra Club, where was regional director for California and Nevada, and his service as Clinton’s leading campaign advisor on environmental issues.

Bob relished his role as an agitator in the administration. In his words, “I didn’t come to Washington to be a faceless federal bureaucrat. I came to Washington to be a bureaucrat in your face.”

Bob Hattoy died of complications from AIDS in 2007. At his request, his friends preserved his ashes in a Martini shaker.

'Lance Loud became the first reality TV star. By coming out to an audience of 10 million TV viewers, Lance was the first openly gay person on American television and became an icon to the LGBTQ community.'
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Lance Loud (1951-2001)
Recorded by Rufus Wainwright
Story by Karen Eyres, Irwin Rappaport, and Rufus Wainwright
Photo by Pat Loud

On May 30, 1971, the TV documentary An American Family began filming in Santa Barbara, where the Loud family — including then-20-year-old Lance — opened their lives to the world. Considered the first reality TV show, the ground-breaking 12-episode documentary first aired on PBS in January 1973 on Thursday nights at 9:00 p.m.  Lance Loud became the first reality TV star.

By coming out to an audience of 10 million TV viewers, Lance was the first openly gay person on American television and became an icon to the LGBTQ community. Although he was initially scorned by the media, the American public loved him and were inspired by his courage to be openly gay.

I’m Rufus Wainwright. I met Lance about 30 years ago in Los Angeles when I first arrived here and was signed to a big record label, and he interviewed me for — I think it was — Out Magazine. We then became great friends and had many a wacky night together doing all sorts of crazy things. And I miss him terribly.

In 1973, he moved to New York City, where he met Andy Warhol (whom Lance had long idolized). Lance and his high school friend Kristian Hoffman reunited and brought back their band The Mumps.  His music career flourished for five years in the club scene, regularly selling out venues like CBGB and Max’s Kansas City, but the band failed to secure a deal with a major record label.

After the Mumps disbanded in 1980, Lance relocated to Los Angeles and became a writer.  For 20 years, he wrote articles
for magazines, including Details, Interview, American Film and Vanity Fair.  Lance also had a regular column in The Advocate, “Out Loud,” in which he mused on the ups and downs of living as a gay icon. He struggled with life in the public eye and became addicted to crystal meth.

Lance had long been dissatisfied with how An American Family ended, and wanted the public to see the Loud family as he knew it to be. With his health failing from Hepatitis C, liver failure and HIV, and realizing that he didn’t have much longer to live, Lance asked the original documentarians from An American Family, Alan and Susan Raymond, to film a final episode in the Loud story.

The Raymonds filmed Lance, along with his family, as he lived out his final days at the Carl Bean Hospice in Los Angeles,
and this would become the 2003 PBS special Lance Loud! A Death in An American Family.

In an article he wrote for The Advocate shortly before his death, Lance said, “Though for years I had told myself that all my unbridled drinking, drugging, and unsafe sex were going to lead exactly here, I’d never really believed it.”

On December 22, 2001, Lance Loud, the eldest son of a family made famous on TV in the 1970s, died of HIV-related illness at the age of 50.  A memorial was held at The Chateau Marmont hotel in West Hollywood, where I sang a rendition of “Over the Rainbow” in tribute to Lance.

'Love doesnʼt end based on a test result.'
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Richard Lawrence Reed, 1956-1995
Story by Michael Martin
Read by Rick Watts

I’m Rick Watts, a member of the West Hollywood Disabilities Advisory Board, and I’m reading Michael Martin’s story about his late partner, Richard.
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Richard Lawrence Reed (February 28, 1956 – November 11, 1995) was a beautiful soul, a kind man and my first partner. We met serendipitously. It was August 1984, and I was supposed to be meeting a co-worker, but the plans fell through, and I decided to go to another local bar.

As my favorite song of the moment — “My Heart’s Divided” by Shannon — started playing, I boldly walked up to a man near the dance floor and asked him if he would dance with me. He agreed, and we became inseparable from that moment on for over 11 years.

I had just turned 19 and was smitten with this lovely man nine years my senior. Like most relationships, ours evolved and deepened after the initial stages of attraction, sex and lust. We become true lovers and friends and began to build a life for ourselves. Neither of us were rich or highly educated, but we were employed and did alright.

Well, within a short period of time, Rick started saying he didn’t feel quite right. It was never anything serious — a cold or a flu — and he would recuperate quickly. At the same time, we were just beginning to hear about the new mysterious “gay illness,” and he decided he wanted to get tested. We tested together sometime in mid-1985, and Rick tested positive and I tested negative.

Our relationship was still in its infancy and there seemed no way it could be true, but it was. Rick learned what information was available and soon had a specialist doctor — the only one in the area.

There was never any question in my mind about leaving the man I loved because of a test result or its ramifications. At that moment, Rick was healthy and we were happy. Love doesn’t end based on a test result.

For a while Rick’s health was fine and he was simply monitored. We proceeded with life as normal, with the exception of keeping his status a secret. Times were different then, and there was so much misunderstanding, stigma and ignorance.

Slowly, Rick’s health deteriorated but not in the usual manner associated with AIDS. He never contracted pneumonia or Kaposi’s sarcoma. It began with thrush and a gradual decline in his T-cell counts. There was only one medication available — AZT — and Rick was put on it, but its side effects only made him feel worse.

Rick also decided to tell his parents about his status and illness. He was close to them and things were becoming more evident. I, however, told no one — not my family, co-workers, supervisors or friends. Gradually, due to the stigma surrounding the disease and our own fear, we withdrew from friends we knew would never understand or accept it. Outside of a few close friends, we were isolated, but we made our life as pleasant and normal as we could.

Well, Rick deteriorated both physically and mentally. It was gradual, painful and unstoppable. In early 1995 on what was to be our last trip together, Rick became rapidly disoriented and argumentative. There had been signs of dementia prior to this, but this was a sudden onslaught. I cut the vacation short, and we headed home. Rick was hospitalized upon our return and given what treatments were available, but they helped very little. He was exhausted, his spirit was depleted, and he was tired of fighting. We returned home and the hospice took over. He gave up on living, but never on us.

Rick died in my arms around 5:00 a.m. on November 11, 1995.

Later, I would find notes Rick wrote to me when he knew the dementia was taking hold and he might not be able to say what he wanted to say. He made a scrapbook of memories of us filled with love notes, cards, an odd memento, or just a written note of special moments of our life and love. He left me a book of writings, drawings, stories and poems he had worked on over the years.

Although my world was forever changed and my heart ripped apart, the most important thing he left me was a feeling of love.  Never-ending love.

'(Glenn) Burke, who played for the Dodgers and Athletics, was the first and only MLB player to come out as gay during his career and the first to acknowledge it publicly.'
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Glenn Burke, 1952-1995
Read by Sterling K. Brown
Story by The AIDS Memorial and Irwin M. Rappaport

Glenn Burke (November 16, 1952 – May 30, 1995) was a Major League Baseball player who died of AIDS in San Leandro, California. He was 42 years old.

Burke, who played for the Los Angeles Dodgers and Oakland Athletics, was the first and only Major League player to come out as gay to teammates and owners during his career and the first to acknowledge his sexuality publicly.

In 1978, having been open about his homosexuality with his Dodgers teammates and management, Burke was traded to the A’s for the veteran Bill North.

Al Campanis, the Dodgers’ vice president, even offered him bonus money if he married.  “I guess you mean to a woman?” Burke replied.

Burke had a strained relationship with Dodgers manager Tommy Lasorda, allegedly because Lasorda’s son, Tom Lasorda Jr., was gay and became friendly with Burke.  Lasorda Jr. died of AIDS in 1991.

Although Burke started regularly in the outfield for the A’s, a pinched nerve kept him off the field. Refusing to take cortisone shots, he quit the team. However, he returned the next spring.

Former Burke teammate Claudell Washington has said that when A’s manager Billy Martin introduced the new players to the team, Martin said, ‘Oh, by the way, this is Glenn Burke and he’s a faggot.”

A knee injury led Burke to the minor leagues. Living as a gay man, he believed that his dream of starring in the major leagues was unlikely, so he walked away. In The New York Times, Burke was quoted saying, “Prejudice drove me out of baseball sooner than I should have. But I wasn’t changing.” 

In his autobiography Burke said, “Prejudice just won out.”

Burke would later star in gay baseball and softball leagues and won medals at the Gay Games. In 1987, he was hit by a car, leading to a downward spiral of drugs, homelessness and crime. In 1991, he pleaded guilty to theft and possession of a controlled substance and served time in prison. By 1994, he had discovered that he was HIV positive.

Burke’s sister Lutha, knowing he would die soon, searched for him on the streets of San Francisco. After finding her brother, she brought him home to Oakland to care for him in his final days.  In December 2020, 25 years after his death, Burke was honored with the opening of the Glenn Burke Wellness Clinic at the Oakland LGBTQ Community Center.

'Each moment I spent in the creative space with Howard Ashman remains with me every day of my life.'
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Howard Ashman, 1950-1991
Recording by Alan Menken
Story by Irwin M. Rappaport and Alan Menken

Howard Ashman was a masterful writer, lyricist and director, in my opinion the greatest of our generation, who died of AIDS on March 14, 1991, at the age of 40.  My name is Alan Menken.  In a collaboration that lasted 12 years, Howard and I wrote the stage and movie musical Little Shop of Horrors and won two Academy Awards, two Grammy Awards and three Golden Globe Awards for Little Mermaid, Aladdin and Beauty and the Beast.

We forged a collaboration that was intense, creative and supremely effective. Each moment I spent in the creative space with Howard Ashman remains with me every day of my life.

With our first project at Disney, Little Mermaid, some studio executives resisted using the song “Part of Your World,” for fear we would lose some of the younger audience members. But Howard insisted that our audience had to know what our little  mermaid Ariel wanted. She needed to have what he called an “I want” song.

I think that as a gay man, Howard grew up knowing what it felt like to be on the outside, wanting to be a part of the world that he saw around him but somehow not able to fully take part.

For two years, while Little Mermaid was being made, Howard knew he had HIV but he hid his illness from everyone on the movie, including me. We found out later that, during the press junket for Little Mermaid at Disney World in Orlando, Howard wore a catheter in his chest so that he could get medicine intravenously at night. When he saw the parade of Little Mermaid characters at the park, he burst into tears.

Later, those of us who worked with Howard realized why he cried: It was the idea that those characters would live on long after he was gone.

The night we both won our Oscars for Little Mermaid, Howard said he and I needed to have a serious talk, and after we got back to New York, Howard revealed to me that he was sick with AIDS. We had just reached the pinnacle of our careers in both theater and the movie business, and we had worked side-by-side for 11 years, yet my dear friend kept it a secret from everyone he worked with that he had an incurable fatal disease. That’s the kind of fear people lived with back then: fear of rejection, of death, of a fatal illness with no cure, and there was so much stigma and discrimination.

But Howard wouldn’t let AIDS keep him down. He was so determined to keep working, to keep creating magical song moments and unforgettable characters. I think AIDS spurred him on to work even harder because he knew he was living on borrowed time.

Howard and I were brought in to fix Beauty and the Beast while it was being developed. But Howard was too sick to commute back and forth to LA, so he finally had to tell Jeffrey Katzenberg that he had AIDS.  Katzenberg agreed that the production would travel from LA to meet with Howard and me in upstate New York.

At the same time, we were also working on Aladdin, which Howard had initially developed. Because of AIDS, Howard was suffering neuropathies, began losing feeling in his fingers, losing his voice and much of his eyesight, all the while we were collaborating on joyous, incredible songs. Howard was determined to keep working as long as he could.

Towards the end of his life, Howard and I wrote “Prince Ali” from his hospital bed. He was down to 80 pounds. He couldn’t see and could barely speak.

Howard and I won an Oscar for Best Song for Beauty and the Beast. And the movie was the first animated picture ever nominated for Best Picture. Howard had passed before ever experiencing the movie’s success.  The award was accepted by his companion of seven years, Bill Lauch.

'My intention in presenting these works is to provoke my community into action.'
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Ray Navarro, 1964-1990
Story & Recording by Debra Levine

Ray Navarro died on November 9, 1990. He was 26 when he died, and I loved him from the moment I met him.

His image is now often circulated, especially the fantastic one of him as Jesus, a reporter from the Fire and Brimstone Network, interviewing people at the St. Patrick’s demonstration.  But on the anniversary of his death, it’s as important to remember he was prescient in his critical analysis, and he left us with an archive of important writing.

In his Outweek obituary, Gregg Bordowitz, Catherine Gund and I wrote:

“Ray always identified AIDS as a crisis among people of color even when ACT UP, the media and most other people — including people of color — hadn’t absorbed that reality.”

We quoted from one of Ray’s essays, the powerful “Eso, Me Esta Passando.” In that essay, he addresses how homophobia remains a significant obstacle in designing effective public health policies in Latino communities in the U.S. His voice is so moving, and his efforts to shift the prevailing discourse of victimhood never ceased until the moment he died.

Ray wrote:

“I am an HIV-positive Chicano gay man from Simi Valley, California. By looking at me, you may not be able to see any of those things. You will also not be able to tell I am college educated, a video maker and scared to death of my own culture. For the last several years, I have grown comfortable with my gay identity, I have marched in the streets, go-go danced in bars, and wept at the death of people I respected who have died of AIDS. So now I am also an AIDS activist. Full time.”

And in conclusion Ray wrote:

“My intention in presenting these works [AIDS activist videos that he curated, created specifically for Latinos] is to provoke my community into action. Here are political analyses, protest images, sexy scenes, angry young men, defiant feminists, and gente. You will be hard pressed to find an ‘AIDS victim.’ Rather, we are Latinas and Latinos living with AIDS.”

'His tombstone simply reads: When I was in the military, they gave me a medal for killing two men and a discharge for loving one.'
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Leonard Matlovich (1943-1988)
Recorded by Lt. Gen. Leah Lauderback
Story by The AIDS Memorial and Irwin M. Rappaport
A version of this story first appeared on The AIDS Memorial on Instagram
Photo by Ted Thai, Time magazine

Leonard Matlovich was a decorated Vietnam War veteran who came out as gay to challenge the U.S. military’s ban on gays and lesbians.

Following in the footsteps of his Air Force veteran father, Matlovich voluntarily enlisted in the Air Force in 1963 at the age of 19 and served three tours of duty. He received a Bronze Star for heroism under fire, and a Purple Heart after he was seriously wounded by a land mine.

I’m Air Force Lieutenant General Leah Lauderback. Openly LGBTQ servicemembers like me owe a debt of gratitude to the courage of Leonard Matlovich and I’m deeply honored to tell his story.

After serving in Vietnam, Sgt. Matlovich was posted at an air base near Pensacola. There, he started visiting gay bars and, at the age of 30, had his first relationship with a man but stayed in the closet in the military for over another year.

The Air Force assigned Matlovich to teach race relations, and he traveled the country to coach other instructors. That experience helped him to understand the similarities between discrimination on the basis of race, and discrimination against the gay and lesbian community.

After reading an article by gay rights activist Frank Kameny in the newspaper The Air Force Times, he contacted Kameny and they devised a plan with the ACLU to challenge the ban on gays and lesbians in the military. On March 6, 1975, he hand-delivered a letter to his commanding officer announcing that he was gay. His brave pronouncement landed him on the cover of Time magazine in September of
1975.

When he refused to promise never again to engage in homosexual conduct, he was
discharged from the Air Force in October of that year. He sued for reinstatement and, after a long court battle, a federal judge ordered the Air Force to reinstate and promote him. Rather than risk discharge for a made-up reason or an appeal of the court decision by the military, Matlovich accepted a financial settlement and dropped the case.

Leonard’s activism continued with his fundraising and advocacy efforts against Anita Bryant’s campaign to overturn a non-discrimination ordinance in Florida and against an attempt to ban gays and lesbians from teaching in California.

He moved to Guerneville, California on the Russian River, where he opened up a pizza restaurant. Later he moved to San Francisco and worked as a car salesman. In 1986, after fatigue and a prolonged chest cold, he tested positive for HIV. In 1987, Leonard came out as HIV positive on “Good Morning America.” He continued his advocacy and later that year he was arrested in front of the White House protesting the Reagan Administration’s inattention to HIV and AIDS.

Leonard Matlovich died on June 22, 1988. He chose to be buried in Congressional Cemetery in Washington D.C. where, unlike Arlington National Cemetery, he could have a tombstone which omits his name. His tombstone simply reads: “When I was in the military, they gave me a medal for killing two men and a discharge for loving one.”

As a final joke, Leonard chose a grave site in the same row as J. Edgar Hoover, the infamous FBI Director who is widely believed to have been a closeted gay man.

Matlovich was one of the 50 people first selected for inclusion in the National LGBTQ Wall of Honor at the Stonewall National Monument in New York City. Leonard’s courage paved the way for service members like me to openly serve.

Thank you, Leonard “Mat” Matlovich, for your tenaciousness and your leadership. And lastly, I thank you for your service to this nation.

'I am coming out as a woman with AIDS because a lot of lesbians still think that they cannot get AIDS and I’m here to say that this can and did happen.'
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Joan Baker, 1966-1993
Story & Recording by Judith Cohen

My friend, Joan Baker was diagnosed with AIDS in 1986 and died on September 3, 1993. She was a tireless and outspoken activist who unfortunately had to deal with ignorance and misunderstanding from her own (lesbian) community … ergo, she would often say:

“It doesn’t matter how I got it, it’s that I have been diagnosed and I am coming out as a women with AIDS because a lot of lesbians still think that they cannot get AIDS and I’m here to say that this can and did happen.”

In early October 1993, members of San Francisco Lesbian Avengers and ACT UP held a public funeral demonstration and march that went from from Dolores Park to Market and Castro and was covered on television news that night. This would end up being likely the only public funeral for a lesbian with AIDS anywhere, ever.

The images of the demo/funeral posters of Joan which were carried that day are now held at the GLBT History Museum in San Francisco.

We love you and we miss you incredibly, Joan. Thank you for your inspiration, your contribution, your life and love.

'Speaking at rallies and demonstrations, she was loud, forceful and eloquent. By now she was known as the AIDS Diva.'
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Connie Norman (1949-1996)
Story & Recording by Peter Cashman

Constance Robin Norman — Connie — was, contrary to popular belief, born right here in California, in Oxnard in 1949. She had been a boy called Robbie who would later transition to Connie at the age of 26. That was in the mid 1970s.

Hello, I’m Peter Cashman, and Connie was my dear, dear friend.

Many of her formative years were spent in Texas in the Houston area, where her grandmother Mabel Murphy owned a bar. Connie would end up working for Mabel, and there she gained a good deal of the Connie that we came to know. The hard-scrabble life in the South made her streetwise and tough, but with a great sense of humor like Mabel.

Many years later, reflecting on her life, she said, “I often tell people I am an ex-drag queen, ex-hooker, ex IV-drug user, ex-high-risk youth and currently a post-operative transsexual who is HIV positive.”  And she added very poignantly, “I have everything I’ve wanted, including a husband of ten years, a home and five adorable longhaired cats…. I do however regret the presence of this virus.”

She had discovered she was HIV-positive in 1987.

Connie had met Bruce Norman in San Francisco. Bruce was a gay man who became her soul mate and husband. He had grown up in the Altadena.

The highlight of Connie’s Bay area years was as a manager at the Trocadero Transfer, the world-famous disco in San Francisco’s Mission District. “Disco Connie” with her huge oriental fans immortalized in the documentary Wrecked for Life.

By the mid ’80s, she and Bruce would attend the weekly “Hay Ride” gatherings in West Hollywood hosted by self-help practitioner Louise Hay. That was where I first remember seeing her and Bruce and many other folks who would join the new national AIDS activist group ACT UP when a chapter formed here in Los Angeles in December 1987.

Connie said she saw ACT UP in the Pride Parade in June of ’88.  Straightway she knew that was where she belonged and joined up. She had never attended college; in fact, she’d been a teen runaway on the streets of Hollywood. But she had an insatiable thirst for knowledge. Completely self-taught she put in an enormous amount of work. She would end up co-hosting a weekly cable show in Long Beach. She would write a regular column for the Southern California LGBT newspaper Update. And she would become the very first queer person in the U.S. to host a talk show on AM talk radio, broadcasting from Hollywood.

Connie was fierce and strong, a force to be reckoned with, whether talking with legendary talk radio host Tom Leykis on KFI or with someone she didn’t agree with, like Wally George, appearing on his infamous shock jock talk show on KDOC 56. Speaking at rallies and demonstrations she was loud, forceful and eloquent. By now she was known as the AIDS Diva, to which I added “Self-Appointed and Self Aggrandizing,” typical of the banter between her and I during those times. So she became a statewide figure and was ACT UP/LA’s representative on the LIFE AIDS Lobby.

One thing that really made Connie stand out to me and so many others was her nurturing instinct, her kindness and her ability to speak to people from all walks of life. Connie educated, informed and spoke from the heart, an innate talent that so impressed people. Later she became public policy director at Pasadena’s AIDS Service Center, continuing the work she’d done with ACT UP. Talking with policy makers, lawmakers, locally, in Sacramento and in Washington.

As a respite from the death and dying that surrounded all of us, Connie and Bruce annually took time out with numerous friends, including myself, in their beloved Kauai. A time to tend to rebuilding health and spirit and befriending queer folk all over the island. Her last trip was in late 1995. Her health was failing, and she rapidly declined during the first part of 1996, passing on Bastille Day that year.

Later that year in early October, ACT UP folks gathered from around the country for a second Ashes protest — scattering the ashes of loved ones on the White House lawn. So, my final goodbye to Connie was as I clung to the White House fence, scattering her ashes onto that famous lawn.

Connie Norman – a beloved warrior who remains in our hearts and dreams.