Stories of Helplessness
Baby Aaron
Story & Recording by Raymond Black
In the late 1980s and early 90s, I volunteered with an organization that placed volunteers in hospitals and group homes to work with children with HIV/AIDS.
I met Aaron when he was 9 months old and cared for him until he died at the age of 18 months. This photograph was taken on his first and only birthday.
The women who were full-time caregivers at the home used to call me Aaron’s father because of our bond. Both his parents had already died. The women used to say he seemed jealous if he saw me holding another child.
Aaron was very sick. His lungs filled constantly with mucus. I was often asked to gently pat him on the back while he was given medication through a nebulizer. I could tell how much stress it caused his tiny body. Seeing him suffer was not easy.
When I spoke, Aaron would put his little hand against my jaw as if he was feeling the words as they formed in my mouth. On his first birthday, I brought him some presents and we had a little party on the ward. He was healthier than he had ever been before. He didn’t need to remain attached to tubes. I was told I could take him up to the rooftop garden.
I walked Aaron around the garden, holding him like I am in this photo. Just him and I, alone outside under a beautiful blue sky. An airplane flew overhead and he looked up. I told him about airplanes. I showed him flowers, rubbed them against his cheek so he could feel them. I just kept talking to him. He held my jaw as I spoke the entire time, feeling the words as they formed.
When Aaron died months later, the women at the home told me that was the only day of his life that he went outside other than for trips to the hospital.
Aaron was moved to a hospital for his last few days and placed in an oxygen tent. I went every day after work. While I was not present when he died late one night, I leaned in under the tent whenever I was there and never stopped talking to him.
Aaron was one of the reasons that I joined ACT UP. His memory fueled my activism. We lost so much in this epidemic. So much suffering. So much death of those far too young to die.
Renée Williams & the Ice Around Us
Story & Recording by John Hanning
In 1981, I was going to school in Memphis. I started listening to music by the B-52’s, Blondie, The Go-Go’s and Joan Jett. It was as if my disco ball was slowly being shattered.
On weekends, I would go George’s Disco. Here were drag shows, and my favorite drag queen was Renée Williams. The DJ would announce her name and the lights of the club were turned off. In the darkness, someone would lay a sheet of clear mylar on the stage floor. Yoko Ono’s Walking on Thin Ice would begin to play and the disco ball would be lit by a single spot light.
Renee would walk out onto the stage — slowly pick up the mylar and eventually fall to the floor under the mylar. It was like she was drowning as she fell through the ice. As she rolled around the floor, wrapping herself in the mylar, she extended her arms gesturing for help.
It was around this time I heard of a “gay cancer” that was spreading in New York. A friend told me not to do poppers while having sex. Renée was featured in the documentary What Sex Am I (1985) – subsequently dying of AIDS.
We were all walking on thin ice.
Morgan MacDonald (1955-1983)
Recorded by Kathryn Danielle Hirsch
Story by Karen Eyres
In the early days of the AIDS crisis, a Florida hospital chartered a private jet to fly one of their patients – a 27-year-old man diagnosed with AIDS – to San Francisco, where he was deposited at a local AIDS foundation with $300 in cash.
Morgan MacDonald from Vero Beach, Florida was discharged from Shands Hospital at the University of Florida at Gainesville in October 1983 and immediately flown to San Francisco, where he was abandoned. MacDonald said Shands Hospital transported him to California against his will. Before his hospitalization, he lived in a religious commune in Florida.
Shands Hospital spent $7,000 for a Learjet to fly MacDonald to San Francisco. He was left on a stretcher at the office building of a city-funded AIDS foundation, which transferred him to the AIDS Ward at San Francisco General Hospital. Dianne Feinstein, then-Mayor of San Francisco, sent a telegram to Governor Bob Graham of Florida, informing him that a public hospital in his state dumped an unwanted AIDS patient on her city. She called the incident “outrageous and inhumane.”
The hospital defended its actions, saying MacDonald no longer needed hospital care and the hospital was unable to find a Florida nursing home that would accept him. The hospital’s public relations director said that the AIDS Foundation in San Francisco agreed to give MacDonald 30 days of free housing.
But Dr. Mervyn Silverman, San Francisco’s public health director, said the Florida hospital had contacted both the City of San Francisco and the AIDS Foundation and “played us one off against the other.”
Dr. Silverman said that while MacDonald was free to return to Florida, his condition was acute and it was essential that he receive appropriate care. Morgan MacDonald died 21 days later at San Francisco General at the age of 27.