Stories of Activism

Constance Robin Norman — Connie — was, contrary to popular belief, born right here in California, in Oxnard in 1949. She had been a boy called Robbie who would later transition to Connie at the age of 26. That was in the mid 1970s.

Hello, I’m Peter Cashman, and Connie was my dear, dear friend.

Many of her formative years were spent in Texas in the Houston area, where her grandmother Mabel Murphy owned a bar. Connie would end up working for Mabel, and there she gained a good deal of the Connie that we came to know. The hard-scrabble life in the South made her streetwise and tough, but with a great sense of humor like Mabel.

Many years later, reflecting on her life, she said, “I often tell people I am an ex-drag queen, ex-hooker, ex IV-drug user, ex-high-risk youth and currently a post-operative transsexual who is HIV positive.”  And she added very poignantly, “I have everything I’ve wanted, including a husband of ten years, a home and five adorable longhaired cats…. I do however regret the presence of this virus.”

She had discovered she was HIV-positive in 1987.

Connie had met Bruce Norman in San Francisco. Bruce was a gay man who became her soul mate and husband. He had grown up in the Altadena.

The highlight of Connie’s Bay area years was as a manager at the Trocadero Transfer, the world-famous disco in San Francisco’s Mission District. “Disco Connie” with her huge oriental fans immortalized in the documentary Wrecked for Life.

By the mid ’80s, she and Bruce would attend the weekly “Hay Ride” gatherings in West Hollywood hosted by self-help practitioner Louise Hay. That was where I first remember seeing her and Bruce and many other folks who would join the new national AIDS activist group ACT UP when a chapter formed here in Los Angeles in December 1987.

Connie said she saw ACT UP in the Pride Parade in June of ’88.  Straightway she knew that was where she belonged and joined up. She had never attended college; in fact, she’d been a teen runaway on the streets of Hollywood. But she had an insatiable thirst for knowledge. Completely self-taught she put in an enormous amount of work. She would end up co-hosting a weekly cable show in Long Beach. She would write a regular column for the Southern California LGBT newspaper Update. And she would become the very first queer person in the U.S. to host a talk show on AM talk radio, broadcasting from Hollywood.

Connie was fierce and strong, a force to be reckoned with, whether talking with legendary talk radio host Tom Leykis on KFI or with someone she didn’t agree with, like Wally George, appearing on his infamous shock jock talk show on KDOC 56. Speaking at rallies and demonstrations she was loud, forceful and eloquent. By now she was known as the AIDS Diva, to which I added “Self-Appointed and Self Aggrandizing,” typical of the banter between her and I during those times. So she became a statewide figure and was ACT UP/LA’s representative on the LIFE AIDS Lobby.

One thing that really made Connie stand out to me and so many others was her nurturing instinct, her kindness and her ability to speak to people from all walks of life. Connie educated, informed and spoke from the heart, an innate talent that so impressed people. Later she became public policy director at Pasadena’s AIDS Service Center, continuing the work she’d done with ACT UP. Talking with policy makers, lawmakers, locally, in Sacramento and in Washington.

As a respite from the death and dying that surrounded all of us, Connie and Bruce annually took time out with numerous friends, including myself, in their beloved Kauai. A time to tend to rebuilding health and spirit and befriending queer folk all over the island. Her last trip was in late 1995. Her health was failing, and she rapidly declined during the first part of 1996, passing on Bastille Day that year.

Later that year in early October, ACT UP folks gathered from around the country for a second Ashes protest — scattering the ashes of loved ones on the White House lawn. So, my final goodbye to Connie was as I clung to the White House fence, scattering her ashes onto that famous lawn.

Connie Norman – a beloved warrior who remains in our hearts and dreams.

In his 30-year career as a U.S. Senator from North Carolina, Jesse Helms was known as “Senator No.” He vehemently opposed the end to racial segregation. He fought against other civil rights legislation including voting rights. He led a filibuster against making Martin Luther King, Jr.’s birthday a national holiday. He was against abortion and opposed the United Nations.

When he felt threatened by a Black candidate running for his Senate seat, Helms’ campaign released a video showing a pair of white hands crumpling a rejection letter while the narrator said, “You needed that job, but they had to give it to a minority because of a racial quota.”  So, this was a hateful guy who would do anything to stay in power and to stop the march toward equality and justice for minorities and women.

I’m Peter Staley. My career as an AIDS activist began in 1987 when I joined the organization ACT UP. There, I became an active member. I planned and participated in protest actions and got arrested 10 times. In 1991, I founded a spin-off of ACT UP called the Treatment Action Group, or TAG for short.

The LGBT community was another target of Helms’ hatred. He was the most vocal opponent in the Senate for federal funding for AIDS research and treatment.

Speaking about the LGBT community, he said, “It’s their deliberate, disgusting, revolting conduct that is responsible for this disease.”

He called us “perverted human beings.” In 1988, he introduced a so-called Helms Amendment, proposing to amend legislation that funded AIDS research and treatment. The amendment prohibited the use of any federal funds to ”promote, encourage, or condone homosexual activities.” It passed with only 2 objections in the Senate and only 47 “no” votes in the House.

Bigotry prevailed against sensible public health policy. An effective HIV prevention campaign for the LGBT community, which was the group most impacted by HIV and AIDS, would have included materials about how to have safe sex. Helms’ amendment endangered more lives — gay, bi and straight — because he didn’t want the government to fund anything that would recognize LGBT sexuality or even our existence.

I’d had more than enough of this bigoted, small-minded man.

A supposed public servant had contributed to the death of my friends and was standing in the way of fighting the disease. Someone needed to confront him, to make him uncomfortable. My goal was to criticize him and get people to laugh at him at the same time. And I wanted TAG to stage a dramatic action soon after we formed the organization. So, I dreamed big. A big condom, that is. Draped over Jesse Helms’ house.

We found his address through a gay man who worked in the Senate. We took photos of the two-story brick Colonial house. Once we knew the standard size of a door and did some fancy math, we knew how large the condom needed to be. We found companies that made huge inflatables like a big blow-up gorilla you might see in front of a car dealership. The lowest bid for the giant condom, made from parachute material, was $3,500. But we were a new organization with little money.

One day while vacationing on Fire Island, I’d had a fight with my boyfriend at the time, journalist Kevin Sessums. He thought my idea for this Helms project was too risky. Kevin went to his friend, music industry legend David Geffen for moral support. But instead of consoling Kevin, David agreed with me. Later that day on the beach, David Geffen handed me a wad of cash, $3,500, and told me to keep his involvement a secret. We had the funds we needed and ordered the inflatable condom.

After the condom arrived, we stenciled the front of it with a message we wanted to have front and center for all the TV cameras. It read: “A CONDOM TO STOP UNSAFE POLITICS. HELMS IS DEADLIER THAN A VIRUS.”

We did a practice run so that we knew how long it took to blow up the condom. We scheduled the action on September 5, 1991, during the Senate’s summer recess while Helms was out of town. We knocked on his door the night before to make sure no one was home. CNN and all the local TV stations were told we’d be doing a demonstration at a politician’s house. They were to meet us at our Arlington, Virginia motel early the next morning, and follow our rented U-Haul truck.

As news cameras rolled, we arrived at Helms’ house with our equipment: the giant condom in a large duffel bag, a heavy portable generator, a long extension cord, two ladders, rubber mallets, plastic stakes, one of those early clunky cell phones, a small cold-air blower for the ground, and a large blower with a custom-built stand for the roof.

We pushed and pulled the duffel bag and air blower up a 28-foot extension ladder to the roof. We unfurled the condom and connected it to the blowers. Other team members staked the bottom of the condom into the grass. Then we prayed the cops wouldn’t arrive until after we’d inflated it. The first police car arrived minutes later, just as the reservoir nipple at the top of the condom was rising over the house. One of the policemen got out of his car, took a look at the improbable scene in front of him, and chuckled.

After spending a lot of time on the radio with their bosses, the cops asked us for our driver’s licenses, wrote down our addresses, and told us it was up to the Senator to press charges or not. The condom stayed up for 15 to 20 minutes, and the press got all the photos and videos they needed. The cops allowed us to climb back up onto the house to take down the condom ourselves.

All we got was a ticket for parking the truck in the wrong direction. We were free to go and could take the condom with us. It’s now in Los Angeles at the One Archives.

That night, CNN and local TV stations around the country played short funny clips of the action. Senator Helms complained about it on the floor of the Senate a week later, calling us “radical homosexuals.” But he never pressed charges and never passed another life-threatening AIDS amendment.

Toward the end of his career, Helms supported increased funding to prevent mother-to-child transmission of AIDS in Africa, but he never supported more funding to fight AIDS in the U.S. He died in 2008.

Herb Ritts’ photography began when he and his good friend Richard Gere — then an unknown actor — did a photo shoot in 1978 in front of a vintage jacked-up Buick.  That got both of them some attention and led to Herb’s October 1981 cover photo of Brooke Shields for Elle magazine, and the cover of Olivia Newton-John’s album, Physical, in 1981.

In the ‘80s and ‘90s, Herb photographed some of the biggest celebrities of those decades.  Madonna, Denzel Washington, Cher, Tom Hanks, David Bowie, Michael Jackson, Matthew McConaughey, Johnny Depp, Courtney Love, Elizabeth Taylor, and many more. Herb directed 14 memorable music videos for major performers including Madonna, Janet Jackson, Britney Spears, Chris Isaak, Jon Bon Jovi and Mariah Carey, and won 2 MTV video awards.   I’m Erik Hyman, the President of the Herb Ritts Foundation and I was Herb’s partner when he died in 2002.  Here is Herb’s good friend Richard Gere with a tribute to Herb …

* * * * *

Oh, how do I even start with Herb Ritts?  Herb was one of my closest and dearest friends.

I met him in L.A … Hollywood. We had mutual friends and Herb was just the nicest human being. He was sweet, and he was generous and curious and didn’t have a mean bone in his body.  He was kind of extraordinary that way.  He really stood out.

He decided to become a photographer and, through very hard work, he became one of the top fashion photographers in the world.  I was just looking through his stuff.  I mean, it is amazing.  It is classic.  He always wanted to be classic, he didn’t want to be a flavor of this month or year, he really wanted something that lasted.  I think those of us who were photographed by him felt that, that he was he was looking for something real and authentic.

And he was a warm photographer who people relaxed around, he made everyone look great.  I look at his photographs and I see where a lot of them came from, but they have his creativity, and his eye and his heart in them.

When he found out that he had HIV, I think I was one of the first people he told, and we just wept like babies.  He had the best healthcare one could get, but he just weakened.  He was having trouble, but I still remember how shocked I was when I got that call December 26, 2002, that he had passed away, it just didn’t seem possible.

Herb, up to the last moment, really helped a lot of people.  AMFAR … he and I worked on a couple of off-shoots from AMFAR, fast-track kind of scientific medical explorations.  He was always donating his time, energy and photographs to help.  He donated cameras to Africans who were going through this to document what they were experiencing with HIV and AIDS.  And his foundation is very focused on that.

So I think besides his own human legacy to his friends and the people who loved his art, I think his brothers and sisters who succumb to HIV have benefited so much from his willingness to put himself out there and embracing everyone who was touched by this disease that fractured all of us.

Herb was the best!

Coretta Scott King spoke out in favor of equal rights for the LGBTQ community when she could have damaged her position in her church and community. Her support was lambasted by some African-American pastors, but she was defiant and called her critics “misinformed” and said that Martin Luther King Jr.’s message was one of equality and inclusion.

I’m Carmen Ejogo, and I had the honor of portraying Coretta Scott King twice, in the television movie Boycott and in the feature film Selma.

Following her husband’s death, she founded and developed programs for The King Center in Atlanta, which trains people in Dr. King’s philosophy and methods, and contains the largest archive of documents from the U.S. civil rights movement.  She led the enormous lobbying and education effort that led to the federal holiday on the birthday of Dr. King.  She was a strong anti-war advocate and a leader in campaigning on behalf of poor people and economic justice.

King’s first public foray into the gay rights movement happened during her leadership of the 20th anniversary of the 1963 March on Washington. She pledged her support for amending the Civil Rights Act to protect lesbians and gays as a protected class of people.

She quoted her late husband who said, “Injustice anywhere is a threat to justice everywhere,” and she advocated for inclusion and a broad coalition of civil rights causes:

“I appeal to everyone who believes in Martin Luther King Jr.’s dream to make room at the table of brotherhood and sisterhood for lesbian and gay people. Gays and lesbians stood up for civil rights in Montgomery, Selma, in Albany, Georgia and St. Augustine, Florida, and many other campaigns of the Civil Rights Movement. Many of these courageous men and women were fighting for my freedom at a time when they could find few voices for their own, and I salute their contributions.”

Ms. King spoke out against a constitutional amendment prohibiting same-sex marriage and reminded the public that “gay and lesbian people have families, and their families should have legal protection, whether by marriage or civil unions.”

In the 1980s, King comforted gay friends with AIDS and with help from her assistant Lynn Cothren, an openly gay man, she created a welcoming environment at The King Center and used their resources to educate the local community about the disease.

In a 1999 speech to launch an AIDS Memorial Quilt initiative for historically black colleges and universities, she named AIDS as “one of the most deadly killers of African-Americans. And I think anyone who sincerely cares about the future of Black America had better be speaking out.”

She reminded audiences that AIDS was far from only a disease afflicting gay people.  King spoke at both the U.S. Conference on AIDS and HIV Prevention Leadership Summit. When one of her close gay friends died, she hosted his family and friends for a day of sewing stitches on a panel that would become part of the AIDS Memorial Quilt.

Coretta Scott King passed away in 2006.  As a fitting tribute to her advocacy for justice, respect and love for all people, the crypt where she is buried at The King Center is inscribed with this passage from Corinthians 13:13:

“And now abide faith, hope, love, these three; but the greatest of these is love.”

Pedro Zamora’s bravery and commitment to AIDS advocacy engaged and educated TV audiences around the world.  Pedro was a cast member on Real World: San Francisco from 1993 to 1994.  I’m Wilson Cruz, and hardly a day goes by that I don’t remember Pedro’s courage and dedication.

On Real World: San Francisco, Pedro was one of the first openly gay people with AIDS that many people ever saw on TV.  Simultaneously, on My So Called Life, I was the first openly gay actor playing an openly gay character in a series regular role on American TV.  And to this day, Pedro still inspires me as an actor, as a man, and as an activist.

Pedro Zamora was the youngest of eight children living in Havana, Cuba when his parents decided to emigrate to Florida as part of the highly-publicized Mariel Boat Lift in 1980.  Pedro was an honor student, captain of the cross-country team and President of the Science Club at his high school where he was voted Best All Around and Most Intellectual.  But at 17 years old, Pedro learned he was HIV positive after donating blood at a blood drive.

His HIV-positive diagnosis propelled him to become a full-time AIDS educator, so that other young people could learn what he was never taught.  This led to hundreds of speaking engagements; a front page article about him in the Wall Street Journal; appearances on major talk shows hosted by Oprah Winfrey, Geraldo Rivera and Phil Donahue; and testimony before the U.S. Congress on AIDS education.

Producers of the Real World wanted to cast an HIV-positive person.  Being cast on the series gave Pedro his biggest platform for AIDS education and won him fans all over the world.  Audiences watched how his HIV status affected his relationships with housemates and his health.  They celebrated his commitment ceremony with partner Sean Sasser, which was the first such ceremony in the history of television.

But about midway through the taping of the series, Pedro’s health began to decline, but he told producers that he wanted them to tell his story until the end.  When the stress from his conflict with a homophobic housemate, Puck Rainey, led Pedro to want to move out of the Real World house, his other housemates instead voted to evict Rainey.  Time magazine ranked that episode #7 of the top 32 most epic episodes in reality TV history.

In late June 1994, the Real World: San Francisco began to air on MTV.  At a cast reunion party only two months later in August, Pedro’s progressing illness was evident.  He was diagnosed with toxoplasmosis, a disease that causes brain lesions, and also a rare and often fatal virus that causes inflammation of the brain.  Doctors estimated that he had 3-4 months to live.

In September 1994, he was transferred to a hospital in Miami near his family.  With the help of the U.S. government, the remainder of his family was allowed to move to the U.S., so that they could be with Pedro before he died.  MTV paid for his medical costs, because Pedro was unable to get health insurance due to having a pre-existing condition.

Pedro Zamora died of AIDS at age 22, the morning after the final episode of the show was broadcast.

A memorial fund, youth clinic, a public policy fellowship, a youth scholarship fund and a street in Miami are named in Pedro’s honor.  He was one of the 50 people first included on the National LGBTQ Wall of Honor as part of the Stonewall National Monument, the first national monument in the U.S. dedicated to LGBTQ history.

Reflecting on Pedro’s death, President Clinton reminded us, “We must remember what Pedro taught us:  One person can change the world — and whether or not we are living with HIV or know someone who is, we all have a responsibility as global citizens to do whatever we can.  Life is short enough as it is.  No one should die from a disease that is both preventable and treatable.”

Lou Graydon Sullivan (June 16, 1951 – March 2, 1991) was an author and activist who became the first transman to die of AIDS. He was 39 years old.

Sullivan was the first transgender man to be publicly known to identify as gay. His activism is considered to be one of the primary reasons for our current understanding of sexual orientation and gender identity as separate, unrelated concepts.

In 1986, Sullivan had reconstruction surgery but was diagnosed with HIV afterwards and informed that he had 10 months to live. It is speculated that he contacted HIV in 1980 just after his chest surgery.

He wrote, “I took a certain pleasure in informing the gender clinic that even though their program told me I could not live as a gay man, it looks like I’m going to die like one.”

In 1973, Sullivan grew up in Milwaukee, born into a Catholic family, and identified as a “female transvestite.” By 1975, he identified as a “FTM transsexual.” Later that same year, he relocated to San Francisco where began working as a woman but cross-dressed as a man.

Sullivan founded female-to-male (FTM) International, one of the first organizations specifically for FTM individuals, helping them obtain peer-support, counselling, endocrinological services and reconstructive surgery outside of gender dysphoria clinics.

Although Sullivan lived as an out gay man, he was repeatedly denied sex reassignment surgery because of his sexual orientation and the view held by the medical establishment that transgender people should adopt “stereotypical heterosexual opposite-sex gender roles.”

Sullivan campaigned to remove homosexuality from the list of conditions that served as a reason to withhold SRS from prospective patients. In 1979, he was finally able to find doctors and therapists who would accept his sexuality, began taking testosterone and underwent a double mastectomy.

Keeston Lowery was an aide to Portland, Oregon City Commissioner Mike Lindberg in the ’80s and ’90s, at a time where very few LGBT people were out and open in politics. He helped start Right to Privacy PAC, the forerunner to today’s Basic Rights Oregon, one of the earliest political action committees dedicated to fighting for equality for LGBT people.

Keeston acted as a mentor to me when I was a young guy interested in politics in the late ’80s and early ’90s. He encouraged me to be my best. He wrote the recommendation letter which got me the scholarship that helped me get to college, and he was always there with a sound piece of advice for me. He listened patiently to my boy problems and teenage drama, and never failed to calm me down after a break up — which I’m sure was pretty exhausting.

Keeston also went to bat for The City nightclub, an underage LGBT gathering place that was relentlessly persecuted by Portland’s then -homophobic political establishment and police force. He knew how important it was for LGBT kids to have a safe place where we could be ourselves.

He died in 1993 and everyone in politics attended his funeral – Governor Barbara Roberts, Mayor Vera Katz – the list went on and on.  I miss him all the time.  He was a father figure to me, and I wish he was around today, laughing his infectious laugh and giving me a shoulder to lean on.

One thing AIDS took from us was a generation of gay men with decades of collective wisdom and historic memory.  Sometimes, I think that’s the cruelest part of the epidemic — the loss of elders who could have acted as a steadying hand for our community.

Keeston would have relished that role.

Vito Russo was a film historian who did pioneering work about the portrayal of LGBT people in film, television, and other media.

Vito was the author of the landmark 1981 book The Celluloid Closet: Homosexuality and the Movies, which was adapted, after his death, into a documentary directed and written by me, Rob Epstein, and my co-director/co-writer Jeffrey Freedman, along with co-writers Armistead Maupin and Sharon Wood.

The narrator of the film is Lily Tomlin, who helped us raise money for the project by headlining a fundraising show at the Castro Theater, along with Robin Williams, Harvey Fierstein and drag performer Lypsinka. After years of trying to get the project off the ground, Lily, who was a good friend of Vito’s, pushed HBO to get behind the film, and when they finally did, we had a movie.

Released in 1995 it was nominated for four Emmy awards, won one for directing, as well a Peabody Award and the Freedom of Expression award at the Sundance Film Festival.

Vito’s book and our documentary were based on lectures and clip presentations that Vito would give at universities and theaters around the world for about ten years before the book was published.  At these events, several of which I attended, Vito would captivate audiences with his wit and his joyful, ferocious personality.  These were community gatherings, like an LGBTQ church, at a time when we had few opportunities to gather collectively. Not only was Vito opening our minds, educating us, entertaining us, and motivating us to act, he was building our community.

As a friend, there was no one more loyal, more caring, or more generous.  When I was struggling to get my film project about Harvey Milk launched back in the early 1980s, Vito hosted a fundraiser at community hall in New York City.  He filled the room, hundreds us sitting on the floor, as he showed clips from his bootleg Judy Garland collection, regaling us with stories.  This was the very first fundraiser for what became the Oscar-winning The Times of Harvey Milk.

Vito wrote some of his book at my flat in San Francisco, escaping New York winters.  With each visit we looked forward to the night Vito made his famous lasagna dinner; he was Italian after all, from New Jersey. He had a laugh always at the ready, smoked Marlboroughs, never shaved his moustache, and was everyone’s best friend.

In 1985, in response to the New York Post’s homophobic and sensational reporting about AIDS, Vito and others founded the Gay & Lesbian Alliance Against Defamation, known as GLAAD.  GLAAD organized protests, campaigns, and showdowns with media executives. In 1994 it became a national organization.

Gradually, newspapers, magazines, movie studios and TV networks paid attention. Coverage of LGBT-related news changed, and LGBT stories emerged from the margins of our culture and into the mainstream. The annual GLAAD Media Awards honors the films, TV shows and other productions that portray LGBT people in a fair, balanced, and diverse way.

Vito was also won of the founders of ACT UP, the activist group that changed the course of HIV/AIDS history by demanding the government and medical establishment pay attention.

Vito died of AIDS in 1990 at the age of 40.  At Vito’s request, by his bedside in his hospital room was the Oscar for our film Common Threads: Stories from Quilt, in which he was featured.

In 2019, Vito was one of 50 listed on the National LGBTQ Wall of Honor at the Stonewall National Museum in New York City at the Stonewall Inn. In his honor, GLAAD bestows the annual Vito Russo Award to an LGBT person who works to fight against homophobia in the media.

Vito Russo: a true pioneer, a hero, and a dear friend.

Filmmaker and professor Marlon Riggs proclaimed that “Black men loving Black men is THE revolutionary act.”

Born in 1957, Marlon Riggs graduated magna cum laude from Harvard in 1978.  In 1981, at Cal Berkeley, he received a master’s degree in journalism, with a focus on documentary film.  He later became the youngest tenured professor at Berkeley’s Graduate School of Journalism and won a string of prestigious awards in his tragically short career.

Hi, I’m Lee Daniels, two-time Oscar-nominated director and producer of Precious and The Butler, and co-creator of the television series Empire.

In its introduction to its collection of seven of Riggs’ films, the Criterion Collection describes Riggs as “an unapologetic gay Black man who defied a culture of silence and shame to speak his truth with resounding joy and conviction. An early adopter of video technology, Riggs employed a bold mix of documentary, performance, poetry, and music in order to confront the devastating legacy of racist stereotypes, the impact of AIDS on his community, and the very definition of what it means to be Black.”

Amidst the culture wars of the 1990s, Marlon exposed and explored what it’s like to be intersectional, to be gay, Black and marginalized in a culture with defined expectations for Black masculinity.  In the film Tongues Untied, Marlon came out as gay and HIV positive but also was clear in his objective of making a film about and for Black gay men.

The principal virtue of the film, in his words, was “its refusal to present an historically disparaged community on bended knee, begging courteously for tidbits of mainstream tolerance.”   The International Documentary Association describes the film as “a manifesto that calls for Black gay men to unburden themselves of the shame-induced silence and claim the centrality and dignity of their identity and voice.”

Former Reagan Communications Director Pat Buchanan, running for President in 1992, used clips of the film to attack President George H.W. Bush as too liberal because tax dollars were being used to support what Buchanan called pornography and immorality.  Riggs had received a grant of only $5,000 for Tongues Untied from the National Endowment for the Arts.  PBS released the film as part of its POV series.  Although some public TV stations wouldn’t broadcast it, Tongues Untied was the first televised documentary about the Black gay experience. Riggs was diagnosed with HIV during the filming of that documentary.

Riggs didn’t shy away from the controversy.  As he put it, “My struggle has allowed me to transcend that sense of shame and stigma identified with my being a Black gay man. Having come through the fire, they can’t touch me.”

Riggs won an Emmy in 1988 for Ethnic Notions, a documentary about Black stereotypes that fueled racial prejudice.  He received the prestigious Peabody Award in 1992 and the Distinguished Documentary Achievement Award in 1991 from the International Documentary Association for his documentary Color Adjustment, which tracked 40 years of the denigrating and exploitative depiction of Black Americans in primetime television. Tongues Untied won the Los Angeles Film Critics Award and won Best Documentary at the 1988 Berlinale Film Festival.

Riggs died of complications due to AIDS in 1994, at the young age of 37.  His film Black Is, Black Ain’t was completed after his death.  It won the Grand Jury Prize and Filmmakers Trophy at the 1995 Sundance Film Festival.  In 2022, Tongues Untied was added to the National Film Registry at the Library of Congress.

Marlon Riggs is the reason that I am here today.

Hi! My name is Mallery Jenna Robinson.  My pronouns are she/her/hers, I identify as an AfraCaribbean Trans woman who has been empowered in her truth for 16 years as a trans woman and over 10 years as a trans woman living with undetectable HIV. 

On May 2, 2011, I was living in Montgomery, Alabama, a junior in college and in a monogamous romantic and sexual relationship with a cisgendered male when I became violently ill and collapsed while working as a server at a local restaurant.  I was rushed to the emergency room, where a panel of tests were run including blood work.

I received a phone call from the Montgomery County Health Department on May 21, 2011 to come into the health department to receive an update regarding my recent blood work. The medical provider walked inside the door to the office where I was waiting anxiously, and informed me I was HIV positive. He then referred me to the Copeland Care Clinic, also known as The Montgomery AIDS Outreach, where I would be linked into care at the Ryan White Program to receive HIV care and management.

I was completely nervous and overwhelmed as a then 21-year-old Black trans woman who was working on my Double Bachelor’s in Biology and History, but nonetheless I was determined to not let this diagnosis deter me from living my best life. I arrived at the Copeland Care Clinic and received training on best practices to ensure I would become and remain undetectable.  I met my amazing medical provider at the time, Dr. B, and he also recognized that I had no access to hormone replacement therapy, so he also prescribed that along with my anti-retroviral medication. 

Despite my medical diagnosis, I was tenacious and determined to continue to live an amazing life and not let HIV define my existence.  I was diligent about taking my medication and, as a result, I went from lab work twice a month to lab work once every six months.

I went on to graduate with my double Bachelor’s in biology and history in May 2014.  I began teaching as a middle school science and history teacher in Duval County, Florida from August 2014 until June 2019.  I traveled to Paris, France and London, England, and finally worked up the gumption to move to Los Angeles, California.  After moving to Los Angeles, I began receiving medical care at the Los Angeles LGBT Center under Dr. V.

Since moving to Los Angeles, I have become a transgender and HIV healthcare advocate, raising awareness to promote accessibility, visibility, and equity for all trans identities.  I work to destigmatize HIV by professionally speaking about my own journey surrounding HIV as a Black trans woman.  I’m a member of the City of West Hollywood’s Transgender Advisory Board, and work as Engagement Specialist and Service Navigator for The Transgender Health Department at the LGBT Center of Long Beach up until 2021.  I now work as the Community Advisory Board coordinator for “We Can Stop STDs LA” with Coachman Moore & Associates.

I participate in outreach efforts with other community leaders and partners to ensure that trans women of color and all trans identities in our community are being tested, and getting linked to care and remaining in care.  Far too often, individuals hear the letters H-I-V and instantly think of it as a death sentence, but it is not. You can successfully live with HIV as long as you are willing to take your medicines and practice other health and wellness strategies to ensure you are maintaining an undetectable status.

As a Black trans woman who has been living with HIV for over 10 years, I just want to say it is okay to be nervous and overwhelmed.  But dig deep and find that determination and tenacity to survive and thrive, so you, too, can motivate and inspire others to stay undetectable by staying in care.  Also, if you’re negative, PrEP and PeP services are also available, along with regular HIV testing.

My name is John Duran, and I’m the former mayor and council member of the City of West Hollywood for 20 years, former legal counsel for ACT UP chapters here in Southern California, Clean Needles Now the needle exchange, and Medicinal Marijuana. But prior to all that work, I was statewide co-chair for the Life AIDS Lobby.

The Life AIDS Lobby was created when we defeated Lyndon LaRouche’s Proposition 64 back in 1986. And we were quite happy to beat that back 2-to-1; it would have quarantined HIV-positive people in camps, had it passed.

And once we soundly defeated Lyndon LaRouche, we thought our work was done. But within six months, the California legislature had introduced almost 200 separate pieces of legislation on HIV and AIDS, from the most progressive ideas like AIDS education in the classrooms and needle exchange, to the most oppressive and extreme draconian measures like mandatory quarantine of HIV positive people in camps — again.

So we didn’t have, you know, the luxury of dissent at that point. We were under attack.

So we ended up organizing ourselves from San Diego all the way up to the north coast of California, and put 102 organizations together at a common table. Everybody was there. All the LGBT PACs, all the Democratic clubs, all the Stonewalls and Harvey Milks and Alice B. Toklas, all the Log Cabin Republican clubs, all the chapters of ACT UP, the sober recovery community organizations, all the Pride festivals, all the LGBT publications, the California nurses, teachers, health care officers — all at a common table.

And we would come together for quarterly meetings and debate policy, but we knew that with all the confusion and fear around HIV and AIDS, we really didn’t have the luxury of being able to disagree. We had to find a common table to hash out policy and stand united. And that’s what we ended up doing.

So we would meet with the California legislative leadership, Assembly Speaker Willie Brown from San Francisco and Senate Pro Tem David Roberti from West Hollywood, and we’d say the following 102 organizations all agree on these policies.

We would adjourn these meetings in memory of those that we had lost since the last time we met. And sometimes the adjournments would go for 30 minutes or more, as people openly wept about comrades who had fallen and people that had shared that common table with us.

And it was such a somber and sullen moment at the end of every quarterly board meeting, because we all realized, no matter what our political differences or our great diversity or gender or race or anything else — it didn’t really matter, we were all in the fight for our lives, and we were there to do what was best for the common good.

I always wondered why I was, you know, such a young man, living in Laguna Beach at the time and no more than 27-28 years old, and I’m the statewide co-chair. At the time, I was HIV-negative, and it was confided in me that they selected me, because a lot of the men who were positive or had AIDS who were elder statesmen and known and tested leadership, were sick and dying.

So it really became the story of lesbian women and our straight women allies taking the reins, along with some of the younger gay men who were recently infected or still HIV-negative, that would end up coming into leadership,  because those that came before us were very, very sick.

It was quite an extraordinary period. Our first executive director was Rand Martin, who’s still up in Sacramento, and our second was the late Laurie McBride, who was just an angel on earth.  Both such incredibly dynamic leaders that really made all the difference in crafting California’s compassionate response to HIV and AIDS — which, by the way, became a model for all the other states around the nation.

I think what gives me such a warm feeling about the Life AIDS Lobby, is remembering that there was no time for differences, no time to see something different about the person sitting next to me. We had to link arms and hands and work together no matter what, because our lives were on the line.

As Richard Berke wrote in The New York Times Magazine in 1993: “President Clinton learned a valuable lesson when he appointed Bob Hattoy to work in the White House: Never hire a dying man; he has nothing to lose.”

Bob Hattoy served as Associate Director of Personnel in the Clinton White House, but that title didn’t capture the fact that he was the LGBT community’s highest-ranking member and representative in the Clinton Administration. When he took the stage at the 1992 Democratic National Convention, he signaled a sea change in the attention that AIDS would get if Bill Clinton were to be elected President. Bob had learned only a few weeks earlier that his HIV had progressed to AIDS-related lymphoma.

Directing his anger to then-President George Herbert Walker Bush, he didn’t mince words: “We are part of the American family, and Mr. President, your family has AIDS, and we are dying, and you are doing nothing about it.”

“I don’t want to die,” Bob said. “But I don’t want to live in an America where the president sees me as the enemy. I can face dying because of a disease, but not because of politics.”

I’m Jeremy Bernard. I was at the convention when Bob spoke. I was working with David Mixner doing fundraising for Clinton and interacted with Bob throughout the campaign.

Bill Clinton’s presidential campaign was the first one to publicly seek and recognize support and donations from the LGBT community. That evening, like many, I wore a black armband to honor our friends who died of AIDS. When Bob spoke, he gave hope to people with AIDS that someone with the President’s ear was in their court, part of their tribe, and might help usher in an era when the federal government actually gave a damn about fighting AIDS. Bob also helped dozens of LGBT people get positions in the Clinton Administration.

Hattoy’s job as an unofficial LGBT representative in the White House was a thankless one. To many of those on the outside, he seemed like a political sell-out who couldn’t get them what they wanted. To those in the White House, he was an annoyance who was never satisfied with progress on LGBT issues.

Bob was a thorn in the side of the White House when they struggled with the unpopular “Don’t Ask, Don’t Tell” policy regarding gays in the US military. He publicly criticized that policy, comparing it to telling gays they could only be florists and hairdressers. As a result, Hattoy was moved out of the White House personnel office and relegated to being the White House liaison to the Interior Department. That job built upon his work for the Sierra Club, where was regional director for California and Nevada, and his service as Clinton’s leading campaign advisor on environmental issues.

Bob relished his role as an agitator in the administration. In his words, “I didn’t come to Washington to be a faceless federal bureaucrat. I came to Washington to be a bureaucrat in your face.”

Bob Hattoy died of complications from AIDS in 2007. At his request, his friends preserved his ashes in a Martini shaker.

Actress Amanda Blake was best known for playing Miss Kitty on the TV Western Gunsmoke for 19 years, from 1955 to 1974.

I’m Jean Smart.  I remember growing up thinking she was sort of glamorous. I don’t think I realized maybe what she did for a living, but I thought she was beautiful and a terrific actress.  I always thought it would be fun to play a character like Miss Kitty.

The red-headed Miss Kitty started as a saloon hostess at the Long Branch Saloon in Dodge City, Kansas, and soon became an owner and the saloon keeper.  The series was set in the 1870s and showed Miss Kitty as a strong single woman who had a close friendship with the lead character, U.S. Marshal Matt Dillon, played by James Arness.  There was no explicit romantic relationship between them.  And their only attempt at romance, a dinner in her room, ended when she was called away to tend to work and returned to find him fast asleep on her bed.

In real life, however, Amanda Blake married five times.  Her fourth marriage, to Frank Gilbert, was the longest lasting.  After Gunsmoke ended, she and Gilbert experimented with the breeding of cheetahs in captivity, eventually breeding seven generations of the big cat.  In her last year on Gunsmoke, she shocked the cast and crew by bringing her pet lion cub, Kemo, onto the set on a leash.

Quoted in the Toledo Blade newspaper, Blake recounted that, “We got him up on the bar of the Long Branch Saloon and he posed for the still photographer like a true ham. But we had to ban him from the set when Jim Arness and I started shooting our scenes, because every time Jim would say his lines, Keno would start to roar.”

In addition to Kemo, Amanda’s and Frank’s Phoenix ranch housed two leopards, two racoons, six dogs, seven cats, two horses, a rabbit, some pheasants, and a toucan.  She and others formed the Arizona Animal Welfare League.  She frequently appeared at events in support of the Humane Society, and she was an early funder of PAWS, the Performing Animal Welfare Society, which protects abandoned or abused performing animals such as circus animals and animals performing in film and TV.  She and Frank Gilbert divorced in 1982.

Blake unfortunately developed oral cancer from her heavy cigarette habit, and after being successfully treated for the disease, she often appeared at fundraisers for the American Cancer Society.  Her fifth and final husband was Austin, Texas real estate developer and city councilmember Mark Spaeth, who had supported and courted the gay community during his political life and was rumored to be a closeted gay man.  The marriage lasted less than a year.  Spaeth died of AIDS-related pneumonia in 1985, less than one month after filing for divorce.

In 1989, Amanda Blake passed away at age 60.  Initial reports attributed her death to throat cancer, but her doctor reported later that year that she had died of a heart attack due to liver failure and AIDS-related hepatitis known as CMV, or cytomegalovirus.

My friend, Joan Baker was diagnosed with AIDS in 1986 and died on September 3, 1993. She was a tireless and outspoken activist who unfortunately had to deal with ignorance and misunderstanding from her own (lesbian) community … ergo, she would often say:

“It doesn’t matter how I got it, it’s that I have been diagnosed and I am coming out as a women with AIDS because a lot of lesbians still think that they cannot get AIDS and I’m here to say that this can and did happen.”

In early October 1993, members of San Francisco Lesbian Avengers and ACT UP held a public funeral demonstration and march that went from from Dolores Park to Market and Castro and was covered on television news that night. This would end up being likely the only public funeral for a lesbian with AIDS anywhere, ever.

The images of the demo/funeral posters of Joan which were carried that day are now held at the GLBT History Museum in San Francisco.

We love you and we miss you incredibly, Joan. Thank you for your inspiration, your contribution, your life and love.

I’m Torie Osborn, telling the story of the “No on 64” campaign against the heinous 1986 proposition to quarantine people with AIDS, put on the California ballot by right-winger Lyndon LaRouche.

Remember, that was during the dark time when AIDS was still new, all the urban gay and bi-men were at risk, there was zero treatment, and the general population still thought it was transmitted in the air, if not by mosquitos.  Early polling showed a potential big win for Prop 64 – largely due to the fear and misinformation out there.  Seventy percent of the electorate was undecided.  But our community rallied, and in four short months, we won the day.

Our campaign consultant was David Mixner – the best in the biz in our world.  He’d headed up the “No on 6” campaign in 1978 against the Briggs Initiative to fire gay teachers.  I was Southern California Campaign Coordinator for “No on 64,” and Dick Pabich (R.I.P) was my counterpart up north. Co-chairs of the campaign were Harry Britt and Diane Abbitt.  So many who are now gone were key spokespeople, such as Rob Eichberg, Randy Klose, Duke Comegys, Bruce Decker, Peter Scott, Jean O’Leary.

We’d learned from Prop 6 that to win, we needed both the volunteer-driven, grassroots mobilization arm and the paid professional campaign, so “Stop LaRouche” worked alongside “No on 64” campaign — we were tightly coordinated.  It was run by Ivy Bottini, Lee Werbel, Phill Wilson, and others.

AIDS phobia was so widespread that at the start of the campaign, no mainstream liberal groups – except the docs and nurses — were with us, except the Southern California ACLU chapter, and a few random Hollywood straight types, like Paul Newman. But we mobilized like crazy.

In four short months, we raised over $2 million, 90% of which came from our own community, and mounted a professional, bi-partisan campaign that ended up winning 71% of the vote in November.

We had hundreds of House Parties and a thousand volunteers who spoke at every civic club and community group and Dem Club around the state. By the last month, every single slate card, every labor union, everyone was with us.  And every voter in California – including every Republican! – received a strong “NO on 64” mailer.

That 71% victory belonged to our entire LGBTQ+ community that rose up en masse to forge a victory out of the agony of AIDS, and, in the course of it, firmly established ourselves, alongside medical experts, as trusted spokespeople on the issue of HIV and AIDS.